Applications Open for Steve Waugh Foundation Grants: Improving Quality of Life of Children & Young Adults Affected by Rare Diseases

Deadline: 31 March 2017

The Steve Waugh Foundation is currently seeking applications for its grants program for the co-ordinated approach to the service, identification, treatment and research of rare diseases to improve the quality of life of children and young adults (age 0-25 years) affected by rare diseases.

Funding Criteria

The Foundation will consider funding:

  • Medicines
  • Treatment
  • Equipment
  • Some, but not all, minor house renovations or items that improve the quality of life for the applicant and their family.

Eligibility Criteria

  • The Steve Waugh Foundation (‘the Foundation’) will support children and young adults aged 0-25 years (applicant must not turn 26 in the year the application is submitted) who have a rare disease with a prevalence of 2:100,000 and a number of published cases or families 2 or less.
  • Applicant must be an Australian Citizen or an Australian permanent resident to gain assistance from the Foundation, and:
    • Have a recognised rare disease as identified on ORPHANET (an Internationally recognised list of rare diseases and reference for medical health professionals). Refer to www.orpha.net
    • Have an Australian Medicare Card and be an Australian Resident for a minimum of 5 years.
    • Have already made an application for Government funding assistance for the requested item, either State or Federal.
    • The rare disease has been formally and officially diagnosed by a Paediatrician and/or Geneticist, and has a name.
    • Applicant has and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or Geneticist.
    • Applicant has and can provide medical, health and other documentation or support material required as part of this application.

How to Apply

Applications must be submitted online via given website.

Eligible Country: Australia

For more information, please visit Steve Waugh Foundation Grants.

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