Deadline: 24-May-21
The Engagement Award program is now accepting full proposals for the Special Cycle: Building Capacity for PCOR/CER in Intellectual and Developmental Disabilities, a research support—not research—special funding opportunity for projects up to two years in duration.
PCORI’s reauthorizing legislation in 2019 included two new research priority areas, one of which centers on individuals with intellectual and developmental disabilities (IDD). These new priority areas provide more focused opportunities for engaging diverse stakeholders and facilitating PCOR/CER that is critical in understanding and addressing the needs of those impacted by these conditions.
This Engagement Award funding announcement offers an opportunity for organizations and community groups to build capacity and skills for patient-centered outcomes research and comparative clinical effectiveness research (PCOR/CER) in IDD, as well as understand the impact of stakeholder engagement within different settings and stakeholder groups focused on this special area of interest.
In the context of the Engagement Awards program, capacity building to support research refers to the following types of projects:
- Projects that support organizations with strong ties to patients, caregivers, clinicians, and/or other stakeholders who have a connection to, expertise in, or lived experience related to the focus area to equip them to engage as partners in PCOR/CER. These projects will focus on building the knowledge, competencies, and abilities of their community to be meaningful partners with researchers throughout the research process from topic selection through design and conduct of research to dissemination or implementation of results.
Funding Information
- $250,000 in total costs
Funding Priorities
This special funding opportunity will support projects that enable organizations and communities to develop their capacity and skills to participate across all phases of the PCOR/CER process, as described above, on topics related to IDD health outcomes. This is an opportunity to address the need to build capacity for stakeholder engagement in PCOR/CER in IDD in areas that would benefit from further research such as:
- Addressing health equity and advancing IDD health outcomes for vulnerable populations, such as addressing institutional racism, building workforce capacity to provide appropriate and culturally competent care; matching high-risk individuals to specialty care and services; addressing social determinants of health and/or risk factors and conditions that disproportionally affect vulnerable populations
- Leveraging community-based and patient-centered models of care delivery
- Challenges related to clinical care delivery, coordination, and access, such as identifying and addressing risk factors for adverse health outcomes; treating chronic comorbid conditions; timing of key provider encounters; and transitions in care
- Telehealth solutions
- Transition to adulthood
- Caregiver needs and access to wraparound support
- Patient needs and preferences
- Other relevant topics related to IDD health outcomes with appropriate justification are welcomed.
They expect that projects selected for an Engagement Award will further PCORI’s goals of promoting the relevance of research to target audiences and the uptake of research results by end users. They are committed to using and sharing successful approaches.
Eligibility Criteria
- Applications may be submitted by any private-sector organization, including anynonprofit or for-profit organization; any public-sector organization, including any university or college hospital or healthcare system; or any unit of local, state, or federal government.
- Nondomestic components of organizations based in the United States and foreign organizations may apply, as long as there is demonstrable benefit to the US healthcare system and US efforts in the area of patient-centered research can be shown clearly.
- The Internal Revenue Service must recognize all US applicant organizations. Organizations may submit multiple funding applications. Individuals are not permitted to apply.
For more information, visit https://www.pcori.org/funding-opportunities/announcement/engagement-award-special-cycle-building-capacity-PCOR-CER-IDD-2021