Steve Waugh Foundation’s Grant on Rare Diseases to improve Quality of Life of Children and Youth in Australia

Deadline: 30 June 2019

The Steve Waugh Foundation has launched its grant program to improve quality of life of children & young adults affected by rare diseases.

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A rare disease is a disease that occurs infrequently or rarely in the general population. In order to be considered rare, each specific disease cannot affect more than a limited number of people out of the whole population. The number of rare disease patients varies considerably from disease to disease.

What is needed for people living with Rare Diseases in Australia?

  • Equal access to quality healthcare;
  • Greater coordination of health services;
  • Greater recognition of the health, economic, and psychosocial challenges they face – Increased research effort nationally and internationally;
  • New diagnostic procedures and treatments;
  • Accurate and reliable information and education about rare disease for families and health professionals;
  • A coordinated national plan;

Funding Information

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The Foundation will consider funding:

  • Government approved Medicines;
  • Treatment;
  • Equipment;
  • Some, but not all, minor house renovations or items that improve the quality of life for the applicant and their family.

In line with their philosophy to fund items that are ineligible to be funded from other sources, applicants must identify:

  • Other eligible sources of funding for their request;
  • If applicants have previously received support from other charitable organisations; or
  • Received support from the Steve Waugh Foundation in the past.

What foundation does not fund?

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The Foundation does not provide financial assistance for, and is not limited to:

  • The purchase of new or used vehicles;
  • Vehicle modifications;
  • Major house modifications;
  • Respite care (for individual grants);
  • Rent, mortgage payments and household utility expenses;
  • Competitions i.e sport/paralympics;
  • Conferences, workshops and meetings;
  • International and national travel;
  • Research and clinical trials.

Eligibility Criteria

  • The Steve Waugh Foundation (‘the Foundation’) will support children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000;
  • Applicants must be an Australian Citizen or an Australian permanent resident of at least 5 years to gain assistance from the Foundation, and:
    • Have a recognized rare disease as identified on ORPHANET;
    • Have an Australian Medicare Card;
    • Have already made an application for Government funding assistance for the requested item, either State or Federal. eg NDIS .
  • The rare disease has been formally and officially diagnosed by a Paediatrician and/or Geneticist;
  • Applicants have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or Geneticist;
  • Applicants have and can provide medical, health and other documentation or support material required as part of this application.

How to Apply

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Applications must be submitted online via given website.

Eligible Country: Australia

For more information, please visit

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