Deadline: 30-Jun-2020
The Steve Waugh Foundation is seeking proposals for its grant program to support children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.
The Foundation will Fund
The Foundation will consider funding:
- Treatment
- Equipment
- Some, but not all, minor house renovations or items that improve the quality of life for the applicant and their family.
The Foundation does not Fund
The Foundation is not currently able to provide financial assistance for, and is not limited to:
- Purchase of new or used vehicles or their modification
- Major house modifications
- Rent, mortgage payments, household utility expenses, general living expense
- Conferences, workshops, meetings
- Travel – both local and international
- Research and clinical trials
Criteria
- You must be an Australian Citizen or an Australian permanent resident of at least 5 years to gain assistance from the Foundation;
- Have a recognised rare disease as identified on ORPHANET
- Have an Australian Medicare Card
- Have already made an application for Government funding assistance for the requested item, either State or Federal. e.g the NDIS
- The rare disease has been formally and officially diagnosed by a Paediatrician and/or a Geneticist.
- You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or Geneticist.
- You have and can provide medical, health and other documentation or support material required as part of this Application.
For more information, visit https://www.stevewaughfoundation.com.au/grants/grant-guidelines/