Deadline: 11-Jul-21
The Administration for Community Living’s (ACL) Administration on Disabilities (AoD) seeks to fund one (1) five-year grant to create a national, person-centered, culturally competent healthcare transition resource center for youth with intellectual and developmental disabilities (ID/DD) to increase self-determination, independence, and quality of life for youth with ID/DD as they transition into adult models of care. The center will also provide resources for family members, guardians, and other support networks in order to assist youth with ID/DD with this transition.
The resource center will be guided by principles of independent living, self-determination, and intersectionality. Partnerships with entities supporting traditionally unserved and underserved youth, including youth from racially and ethnically diverse populations, youth who use augmentative and alternative communication, and youth who are disconnected from ongoing supports and systems (such as youth transitioning out of the juvenile justice or foster care systems) are critical to the success of this project.
Goals
As a result of this project, ACL envisions the following long-term outcomes:
- Increased self-determination, independence, and quality of life for youth with ID/DD;
- Increased access for youth with ID/DD to culturally competent, person-centered healthcare services and supports; and,
- Increased collaboration across AoD health equity programs and national resource centers, to share best practices and connect the constellation of ACL health equity investments to improve overall quality of life for people with ID/DD. Some of these initiatives include:
- The Alternatives to Guardianship initiative at University of Massachusetts, Boston;
- The Partnering to Transform Health Outcomes with Persons with Intellectual Disabilities and Developmental Disabilities (PATH-PWIDD) at Rush University, College of Nursing;
- The Center for Dignity in Healthcare for People with Disabilities at the University of Cincinnati Center for Excellence in Developmental Disabilities; and
- AoD’s ID/DD data equity initiative.
ACL also anticipates the following shorter-term outcomes:
- Youth with ID/DD gain an understanding of their legal rights and responsibilities in a healthcare setting;
- Youth with ID/DD understand and learn how to proactively plan for medical appointments and procedures;
- Youth with ID/DD learn to lead their medical appointments and interaction with medical professionals;
- Youth become more comfortable engaging with medical professionals;
- Youth with ID/DD learn about the co-occurring health conditions they may experience;
- Youth learn to lead their at-home healthcare routines such as medication management;
- Youth with ID/DD make decisions about their healthcare and wellness next steps, in consultation with providers, family members, and adult guardians as appropriate; and
- Family members and adult guardians learn how to effectively support youth in transition to adult providers.
Funding Information
- Estimated Total Funding: $ 485,000
- Expected Number of Awards: 1
- Award Ceiling: $ 485,000 Per Budget Period
- Award Floor: $ 450,000 Per Budget Period
- Length of Project Period: 60-month project period with five 12-month budget periods
Eligibility Criteria
Domestic public or private non-profit entities including state and local governments, Indian tribal governments and organizations (American Indian/Alaskan Native/Native American), faith- based organizations, community-based organizations, hospitals, and institutions of higher education.
For more information, visit https://www.grants.gov/web/grants/view-opportunity.html?oppId=332412
